Picture the scene.....
You walk into the office and covering the entire desk are print outs of every single email message, reply and complaints I had ever sent to the physio manager, private physio reports...everything! You just know its going to be a interesting appointment.
And I have to say it was!
After some non-formal 'how you doing' 'how you coping' 'wow he has got big!' she got down to business.
His pead is fully aware (now) of he issues we were facing in regards to Ollies physically
A thorough exam of his entire body echoed what the private physio picked up on right away all those month ago and what we had been saying for the past year!
She has finally acknowledged that he does have left side weakness, his hips, hamstrings and ankles do have some tightness in the muscles.
She says that although its unlikely, due to his MRI report, that it is neurological such as cerebral palsy but she can't rule out the possibility that it could be.
So still none the wiser on that aspect.
We then set about talking of what actions need to be taken. I told her I went over every bodies heads and self refereed Ollie to Orthotic for a proper assessment of his feet and ankles, though thinking about it now I may mention about his spine too. She is in full support of this as she say he really needs proper fitting footwear and insoles to allow him to function with some sort of normality.
She said she was happy to follow most but not all of the recommendation on the private physio report. Due to funding and such like it would be almost imposable for them to do this which I can totally understand.
She asked what I would like in regards to physio for Ollie. To be honest we have enough people in and out of his life already and that all we need is for someone to show us what needs to be done and to have regular reviews would be all we needed. She agreed and is arranging for a different physio most likely the physio manager.... Ekkk! To come and show us how to do stretches on Ollie day and night. The pead is also going to make arrangements for the physio to go into pre-school when he starts to work out a program for him to follow whilst there.
I have to say this was one of the best and most thorough appointments we have ever had!
It was brilliant to see that OK after a bit of a fight everyone is now singing from the same song sheet.
At the end of the day budgets, funding, time make no difference to me. If these are things that Ollie needs we are going to fight to the bitter end to get them for him. After all, is it not his basic human right to have access to these things
My message to you all is keep fighting and keep shouting!