The past month has seen us enjoy an eventful camp and has also delt us some new challanges.
Every year we travel acrossed the contry to join in a week long camp with a charity we belong too. This for us and the many other families that join in is the highlight of our year. Comeing together as one big family, showing one another the support that many need. This charity is Special Kids in the UK ( www.specialkidsinthuk.org ). This is a national charity run by parent to support other parent who like us have disabled and special needs children.
The week long event is filled with joy , laughter and a few water fights.
The highlight of this is a ballon release on the Saturday afternoon after a fun packed family fun day.
This event is an emotional one and is dedicated to the many children who have lost the fight over the years and become angels.
Every year we travel acrossed the contry to join in a week long camp with a charity we belong too. This for us and the many other families that join in is the highlight of our year. Comeing together as one big family, showing one another the support that many need. This charity is Special Kids in the UK ( www.specialkidsinthuk.org ). This is a national charity run by parent to support other parent who like us have disabled and special needs children.
The week long event is filled with joy , laughter and a few water fights.
The highlight of this is a ballon release on the Saturday afternoon after a fun packed family fun day.
This event is an emotional one and is dedicated to the many children who have lost the fight over the years and become angels.
The week just goes too quickly but yet we were all so glad to see our own beds....
Came home to find a letter sitting on the doorstep. It was for a visit from Portage. For the following day!!! Was actually quite lucky we came hope a day early!
It was just a bog standard " how can we help" visit and hopfully in the next few week Ollie should have his worker assigned to him.
This week we also had Ollie appointment to see his new development pead. The appointment seemed to go on forever, was very informative but delt us a new set of cards. In the back of my mine I already knew what she was saying but it doesnt make it any better just confirms the worries and is a great kick to the guts knowing you were right (A note to anyone if you have a niggleing feeling or thoughts about your childs development. Share it with your partner or husband. I failed to do this and i feel it made matters much worse when it comes to time like these. It causes unwanted friction and is no good for either of you)
Anyway although not a firm diognosis of what we are dealing with until they have dotted the i's and crossed the t's, it gets the little man in the system to recived the support he needs to progress.
Came home to find a letter sitting on the doorstep. It was for a visit from Portage. For the following day!!! Was actually quite lucky we came hope a day early!
It was just a bog standard " how can we help" visit and hopfully in the next few week Ollie should have his worker assigned to him.
This week we also had Ollie appointment to see his new development pead. The appointment seemed to go on forever, was very informative but delt us a new set of cards. In the back of my mine I already knew what she was saying but it doesnt make it any better just confirms the worries and is a great kick to the guts knowing you were right (A note to anyone if you have a niggleing feeling or thoughts about your childs development. Share it with your partner or husband. I failed to do this and i feel it made matters much worse when it comes to time like these. It causes unwanted friction and is no good for either of you)
Anyway although not a firm diognosis of what we are dealing with until they have dotted the i's and crossed the t's, it gets the little man in the system to recived the support he needs to progress.