To those who have never experienced reflux it where a baby is sick a few times it can make them a little grumpy.... in some cases this isn't far from they truth and it can usually be controlled with a change in diet.
Sadly for some including Ollie it is a never ending battle!
Ollie has dealt with reflux since he was born so has never known any different. This is one of the reasons I believe he copes so well!
The first 18-24 months consisted of weekly visits to the GP numerous emergency admissions into hospital, trials with all manor of medication. Sadly we even experience ALTE ( Apparent Life Threatening Episodes) where Ollie actually stopped breathing.
We were told at the beginning of this journey that he would grow out of it by 6 months, then by the time he stated solid food, then by the time he was sitting..... then walking....... They just don't say this any more as now he is coming up 5 it is very apparent this is a life long issue.
Recently think have seemed to have taken a turn and not in a good way either!
We are seeing many choking episodes and he has suffered a number of chest related issues due to aspiration. Complaints of feeling sick after he eats...... the list is just mounting for such a small person.
He is due to see his Pead at the end of this month which isn't an appointment we will be looking forward too as we only have 1 option left at the moment which is to operate.
In other news
After saying good bye to the best paediatrician EVER! We said hello ( finally) to Ollie's new one.
She is fantastic! Although no one will every be the same as Dr.C, Dr. M comes in a very very close second.
Truth be told she isn't happy, he isn't 'classic' of cerebral palsy. Cerebral palsy should not deteriorate/regress/get worse yet Ollie is! His mobility is causing concern. His learnt abilities are not what they used to be and his tone is changing at an uneven rate in that his tone is now very asymmetrical. Her words were 'best case scenario is, it's JUST CP we are dealing with'
Ollie has since had another MRI for which we are still awaiting result but due to a clerical 'error' we were cc'ed into an internal email which talks about 'changed' and if they are classic of 'X,Y & Z' ( I'm not releasing such details until confirmed).
His eyes are also causing us concern. Ollie once totally unnoticeable outward squint has now become VERY noticeable. His spine looks to be changing in that i have now noticed a curve in it.
We are at a point where if it can go wrong it will do for the boy and i really done know how he copes with all that he is dealt with in his sort life!
On a much brighter note Ollie started school this week!
The have been fantastic despite him having a major fall on his first day and nearly breaking his nose!
We expected some teething problems and i have to say they have dealt with all we have thrown at them so far in a very professional manor! Though sadly the struggles are already being seen but i have confidence that the school are able to help him through this in the best possible way.
Sadly for some including Ollie it is a never ending battle!
Ollie has dealt with reflux since he was born so has never known any different. This is one of the reasons I believe he copes so well!
The first 18-24 months consisted of weekly visits to the GP numerous emergency admissions into hospital, trials with all manor of medication. Sadly we even experience ALTE ( Apparent Life Threatening Episodes) where Ollie actually stopped breathing.
We were told at the beginning of this journey that he would grow out of it by 6 months, then by the time he stated solid food, then by the time he was sitting..... then walking....... They just don't say this any more as now he is coming up 5 it is very apparent this is a life long issue.
Recently think have seemed to have taken a turn and not in a good way either!
We are seeing many choking episodes and he has suffered a number of chest related issues due to aspiration. Complaints of feeling sick after he eats...... the list is just mounting for such a small person.
He is due to see his Pead at the end of this month which isn't an appointment we will be looking forward too as we only have 1 option left at the moment which is to operate.
In other news
After saying good bye to the best paediatrician EVER! We said hello ( finally) to Ollie's new one.
She is fantastic! Although no one will every be the same as Dr.C, Dr. M comes in a very very close second.
Truth be told she isn't happy, he isn't 'classic' of cerebral palsy. Cerebral palsy should not deteriorate/regress/get worse yet Ollie is! His mobility is causing concern. His learnt abilities are not what they used to be and his tone is changing at an uneven rate in that his tone is now very asymmetrical. Her words were 'best case scenario is, it's JUST CP we are dealing with'
Ollie has since had another MRI for which we are still awaiting result but due to a clerical 'error' we were cc'ed into an internal email which talks about 'changed' and if they are classic of 'X,Y & Z' ( I'm not releasing such details until confirmed).
His eyes are also causing us concern. Ollie once totally unnoticeable outward squint has now become VERY noticeable. His spine looks to be changing in that i have now noticed a curve in it.
We are at a point where if it can go wrong it will do for the boy and i really done know how he copes with all that he is dealt with in his sort life!
On a much brighter note Ollie started school this week!
The have been fantastic despite him having a major fall on his first day and nearly breaking his nose!
We expected some teething problems and i have to say they have dealt with all we have thrown at them so far in a very professional manor! Though sadly the struggles are already being seen but i have confidence that the school are able to help him through this in the best possible way.